Eating difficulties and disorders can start from any age. Dasha Nicholls explains the differences between anorexia, bulimia, binge eating and more. Dasha also explains how to treat eating disorders and reinforce healthy eating habits at home.
Transcript
Who are you?
Hi, my name's Dasha Nicholls.
I'm a child and adolescent psychiatrist.
Ask me about children and young people's eating disorders.
What is an eating disorder?
So eating disorders are a group of mental disorders
in which anxieties, thoughts, feelings,
and behaviours that are associated with eating
become problematic.
So an example might be when somebody is eating so little
that it makes them unwell
or stops them being able to function in some way
or eating so much without being able to stop.
Those are sorts of examples of disordered eating behaviours,
but also like all mental disorders, it's really the thoughts
and feelings that are central to them.
And that depends which eating disorder you're talking about.
Can children get eating disorders?
Some kind of feeding
and eating disorders are more common in children such as,
for example, ARFID, avoidant, restrictive food intake disorder.
We think that's probably more common in children
and young adolescents.
But the eating disorders like anorexia nervosa,
bulimia nervosa, binge eating disorder, they tend
to onset slightly later.
However, anorexia nervosa can occur in children
probably from about seven upwards as soon
as children are able to really articulate the thoughts
and fears that are driving their eating behaviour,
and those examples
of children having anorexia nervosa date
back to Victorian times.
So that's not a new phenomenon.
Are eating disorders more common in girls than boys?
The ratio of girls to boys
who have any particular eating disorder does depend on which
eating disorder, anorexia nervosa, which is the one
that often worries parents the most is more common in girls
by some margin, but that may be partially
because we're not as good at recognising it in boys.
However, some of the other eating disorders,
perhaps the ones that are less obvious, like bulimia nervosa
and binge eating disorder, can affect boys in
comparable ratios sometimes to girls
and avoidant restrictive food intake disorder - ARFID -
in younger children is actually more common in boys than
girls.
What are the most common eating disorders in children?
So the Commonest eating disorders in children does depend
on what age you are looking at. Children presenting
to clinical services tend
to have restrictive eating disorders
because that's what worries people is when a child is not
eating enough and it's starting to impact their health,
which means that in clinics we tend to see a lot of children
with anorexia nervosa
and increasingly with ARFID.
With younger patients under say the age of eight,
ARFID is probably the most common diagnosis.
From about 11-12 upwards,
anorexia nervosa would probably be the commonest diagnosis,
but in the population as a whole, bulimia nervosa
and binge eating disorder are probably as common,
if not more common than anorexia nervosa,
but they often take much longer to get to clinical care
for somebody to notice that anything's wrong
because it isn't associated with
dramatic changes in health in such an obvious way as
when a young person's not eating enough.
So there's a difference between what's common in clinic
and what's common in their population.
Are eating disorders associated with any other conditions?
Because eating disorders are mental disorders,
they are associated with lots of other disorders that affect
emotions, thoughts, and feelings
and things that make it difficult to process emotions.
So some examples might be anxiety, depression,
obsessive compulsive disorder,
but also people who have autism spectrum disorder
and attention deficit hyperactivity disorder are also more
prone to have eating difficulties as well,
because these all affect a young person's ability
to manage their feelings, to manage their behaviour,
and to be able to self-control essentially.
And in some of these disorders, there's a tendency
to have too much control or to need quite a lot of control.
And then in some of the eating disorders,
there are difficulties with self-control.
So it does depend on the type of eating disorder,
what sort of other mental health problems are likely
to go alongside.
What is the difference between 'normal' behaviours like picky eating and an eating disorder?
Telling the difference between an eating disorder
and normal eating behaviour
or the way that eating behaviour changes
as a child is growing up can be really tricky.
A really easy example is picky eating.
It's very normal for children to go through a phase
of picky eating when they're about two or three, maybe four.
And then again, actually often there's a phase
of being more restrictive in the types
of foods you'll accept at times of big change.
So an example is when a child is coming up to changing
to secondary school, for example,
and the world gets a bigger
and more scary place, they're more likely
to revert to safe foods.
So I think it's important to kind
of think about is this normal
for the developmental phase that somebody's in?
But, and I don't know if this analogy works for you,
but it's one I often use a bit like wetting.
The bed is normal when you're a small child,
there comes a point where it's no longer normal.
So if you're still wetting the bed
as a child when you are 9
or 10, that's starting to look outside the normal range.
So with all these things, it's about normal variation,
developmental variation.
And then at what point do you start to think, okay,
this has been going on a little bit too long,
or this has become a persistent pattern of behaviour
that is starting to look abnormal.
So that's one way of telling is when a behaviour becomes
persistent in some way.
Now some of their behaviours, depending on how
worrying they are, that behaviour can only last
for a short period of time before you get into trouble,
before you're likely to start to experience some kind
of compromise as a result of it.
But with other behaviours, it's not until you start to
really have some impact from that behaviour that you are
likely to be thinking "hm, maybe this is tipping
outside the normal range".
So an example might be with picky eating,
if somebody has a very restricted range of foods
and that's absolutely manageable until they're 8
or 9, but there comes a point
where they're no longer able to go out with friends
or go for sleepovers or go on school trips
because their range of foods is so restricted,
that's when you might start to think this is beginning
to cause a problem, what we would call
in the technical term, some functional impairment
as a result of the eating difficulty.
So that's one way of knowing when something's
outside the normal range, is it's beginning to impair
function in some way, what somebody can do.
The other way of knowing when something's falling
outside the normal range is when it starts
to cause a lot of distress.
If it's causing anxiety, if it's causing somebody
to get very upset when they're faced with foods
or leading somebody to avoid doing things
because it's so challenging.
That's another way of knowing when something's
outside the normal range.
But it can be very hard to know at what point to worry.
And I think if you're not sure, that's the time to check in
with a health professional.
My child's eating habits have changed, could it just be a phase?
Learning to move from being fed
to feeding yourself -
eating - what we would call eating, is a really tricky process.
There's a real back and forth about who's in charge,
who's in control, who's making the choices and so on.
And it's very common for children
and young people to use food as a way
of regulating both their own behaviour
but also their relationships.
So you'll probably know that when a child's upset
or cross, they may refuse to eat.
That would be a very common way of a child saying,
this is something I've got a bit of control over
and I'm going to do things differently.
And knowing when
that's a short term thing,
and of course, understanding that for what it is, which is
a momentary emotional thing,
is very different from seeing a persistent
change in behaviour.
The other time that young people tend to want
to distinguish themselves
through their eating behaviour is adolescents.
So it's very common for adolescents, young people to
try experimenting with different ways of eating.
And a very, for example, common one in recent years is
for people to become vegan.
That used to be quite a rare thing to do.
Now it's relatively common,
but it's not unusual for an adolescent to say,
to express their identity through a set of different set
of values or beliefs from their parents.
It's part of developing your identity as a young person.
And again, that's where it's really important
to make a judgement about whether this is something that
is okay and a part of young person's growing up experience
and wanting to define themselves.
Or whether it's the beginning of a young person beginning
to show some anxiety about something.
So, my overall response would be,
yes, it is common for young people to go through phases
of experimenting with different ways of eating,
but it's okay as a parent to be curious about that.
I've noticed your change.
I've noticed you've changed how you're eating at the moment.
Just wondered why. And to try and understand it.
Because what you're really trying to work out is,
is it driven by anxiety of some kind,
or is it just sort of some way of beginning to think,
who am I and who do I want to be?
And that's the tricky thing.
But if you can open up some conversation about it rather
than allow it to be secretive
or develop a life of its own, I think
that's the most likely way of preventing
what might be a phase turning into a problem.
How can I encourage my children to have a healthy attitude towards food, emotions and body image?
The best way to encourage your child to have
a healthy relationship with food
and their body is through your own behaviour.
I know it's an obvious thing to say
and puts a lot of responsibility on parents,
but actually it matters quite a lot.
So if you are constantly commenting on their weight in their
shape, they're going to become self-conscious about it.
If you're constantly commenting on your own weight and your
shape, they're going to become self-conscious about theirs.
So the language that you use around weight, shape, eating,
really does matter, and also showing that you can eat
and be healthy in a normal way is really important.
That can be challenging if you yourself have got struggles
with eating, of course, in which case it's probably
important to be quite transparent.
You've had your own difficulties, and
therefore you are really concerned about making sure that
your child doesn't have the same sorts of difficulties.
It doesn't necessarily mean
that you will be handing on any worries
that you have about eating,
but what it will mean is that you are in a better position
to recognise it if your child is struggling
and that you might be able to head it off
or even help them through your own experience
or make sure that they get to help if they're struggling.
How important is language in relation to eating disorders with children?
Eating disorders are all about thoughts and feelings,
and so how a young person defines themselves,
what they value and how they think are all shaped
by language and what's central to
the most,
but not all, eating disorders are concerns about body weight
and shape, and that can be really challenging in society,
particularly right now I think,
where everybody's very concerned about
how many people are overweight in the population
and also with the challenges
that young people face on social media
with people telling them the right way to look,
the right way to eat the right way, to be
the right way to exercise.
These are all things that can make young people feel
that they're not good enough
or they're inadequate in some way.
So it's really important that you acknowledge
that young people are surrounded by all these pressures
and these messages from society
about weight, shape and eating behaviour.
And I think
just talking about eating disorders straight up isn't really
what we would think is the most helpful thing to do in terms
of preventing somebody to be anxious.
But encouraging positive body image,
helping somebody not deal
with negative feelings about themselves through their eating
and through taking it out on their body, is really the best
way to think about preventing a young person
having an eating disorder.
It's also quite common for young people
to be worried about their body, particularly
as their body shape changes quite
dramatically during puberty.
And so that's a time when girls, particularly, often become
very anxious about how their body is going to be
until it sort of settles down into its adult shape.
So anticipating those normal changes in body shape as well
and helping your child adjust to those normal body changes
is probably more important than talking to them about
anxieties that they may develop an eating disorder.
My child is at a higher weight, should I be concerned?
You don't need me to tell you
that being at a higher weight has long-term health risks.
Those messages are everywhere
and everybody knows them and children know them.
And it's manifest in everyday life with calories on menus
and posters on walls and healthy eating lessons in schools
and being weighed and so on.
So there's a lot of messages out there about the
concerns about higher weight.
What I don't think is talked about enough is
what the psychological impact of that can look like
and whether it poses a risk for eating disorders.
And people at higher weight, regardless of their age,
are much more likely to have a negative body image
to dislike their body,
and they're much more likely, importantly, to try dieting.
And dieting is one of the biggest risk factors
for the development of eating disorders,
particularly in children and young people
because they often don't know how to do it in a healthy way.
They don't know how to lose weight effectively.
And so they experiment,
they try things and they get it wrong.
They misjudge how to do it
and so they repeat it.
So that's one of the ways that we often see young people
presenting is that they've started out
what looks like a really sensible way of trying to
manage their own weight,
but it's got out of control in some kind of way,
or they've got themselves fixed into a set of beliefs
or rules about ways of eating
that are actually not based in reality
or health or sensible advice.
So there are ways I think that you
as parents can help both
encourage a young person to have a
positive body image is really, really important
for preventing that risk of feeling that going on a diet
and losing weight is the only way to be happy.
Encouraging activity and moving bodies in a healthy way
and encouraging healthy eating behaviours is much,
much more important and valuable
and hopefully would prevent both escalating weight gain,
but also prevent the development of eating disorders than,
for example, labelling somebody as obese
or overweight, encouraging them to diet in ways
that are not proven to be helpful.
And some of the things that young people might think are a
solution to managing what
for them has become a source of distress.
And I guess related to that is the important part
of acknowledging if there is distress.
If your young person's upset by their weight,
how can you help them with that?
So those are all important ways
of both preventing escalating weight gain,
but also preventing the onset
of eating disorders if your child is at a higher weight.
My child has an eating disorder - how should I approach mealtimes?
Meal times when your child has an eating disorder are the
most tricky moment,
and it happens three, four times a day,
sometimes five or six, depending on where your child is at
with their eating disorder and how much they need
to be re-fed.
The most important thing is planning. That everything is...
there's no surprises for anyone.
Everyone knows what's going to happen.
Everyone knows what's expected,
that there's some agreement about how long the meal is going
to take, what's expected to be eaten and so on.
And that enables everyone to feel a little bit calmer
because I think the other key issue is about remaining calm,
about being able to manage emotions
because for your child, this is the biggest,
most anxiety provoking moment. An analogy I often use
and it's not a perfect one is if you've got a fear
of flying, the moment of getting on the plane is the bit
that is the hardest.
And you need people around you to really stay calm
and reassuring
and just keep nudging you in the right direction,
helping you overcome that anxiety.
There's a lovely video by somebody called Eva Musby
about bungee jumping,
and she uses the analogy that eating a meal
you are trying to help your child overcome the sort
of anxiety that would be associated with bungee jumping.
And no amount of logic about the strength of the rope
and calculation of risks and so on
and so forth is going to help somebody
actually take that leap.
They just need a moment of courage and calm reassurance.
So that's a video
that's well worth watching if you're trying to think
what sort of language do I use to help my child do the thing
that I know for them is the hardest?
That's particularly the case for anorexia nervosa.
But I think it's also important to recognise that people
with other types of eating disorders arfid, bulimia,
nervosa, binge eating disorder.
You may be trying to help them do something different.
You might help them manage, be able to control
how much they're eating for example,
and then really importantly,
after they've eaten, you need to anticipate
that there will be heightened emotion afterwards.
So if you've done what is so hard
and all of the fears of doing it have risen up,
I've eaten the wrong thing, I shouldn't have done that.
Planning what the post meal time will look
like is really, really crucial.
There are all sorts of techniques
and there's a lot of good advice
now out there that parents can actually use
during the mealtime.
But I think this is a conversation.
It's a conversation within a family.
It's what would happen during the treatment.
You would talk and you would practice thinking,
how's this meal going to work best for us?
Who needs to be at the table?
Where do I sit in relation to my child?
Do I sit opposite them? Do I sit next to them?
What's the best way of reassuring my child?
How do I plate up the food?
Who's doing the plating at what stage in treatment?
So all of this is very much part
and parcel of what treatment is about
because we know that successfully managing treatment,
managing mealtimes is the key thing,
certainly in the first stages of treatment
and through successfully managing the eating
and the mealtime behaviour, then you're more likely to get
to the emotions behind it, the thoughts and feelings
and anxieties that arise out of it.
And that's where the talking therapies
and the talking elements of therapies come in.
Do I need to tell my child's school if I am worried about their eating?
Given that young people spend quite a significant amount
of time at school, it may be important
to have a conversation with school depending on
where they're at in their illness, in their treatment,
or whether you are just in the early stages
of having some concerns.
If you're worried about a child's eating, then talking
to school is probably not a bad way
of finding out whether what's happening is just happening at
home or whether they've also had concerns.
But it's important to remember that you need to make sure
that you are not breaking trust as you do that,
that you are not going behind your child's back
and talking to their teachers about them.
Particularly with older adolescents,
that breakdown in trust probably wouldn't be a good starting
point. If they are quite unwell,
if they're needing help to eat at most meal times,
then talking to school is going to be necessary, isn't it?
Because they're not going to be able to be in school
unless they can manage to eat lunch
and probably some snacks as well.
And then you may need to enlist the help
of somebody at school either to see if they can help
and schools do vary in how much they're able
to support young people in schools or
because you'll need to make special arrangements in order
to help your child eat
what they need to have to be in school.
So at that point, regular dialogue
with school will be necessary,
and your clinician can help with that if you're in treatment
by that point, to work out
how school can best support somebody.
So yes, it's very much a team effort.
All the adults that are around a child usually need
to be involved in thinking about how to help them
and support them, and school's a central part of that.
My child's weight is healthy, but could they still have an eating disorder?
It is a common myth that eating disorders
are defined by weight.
They're really not. Anorexia
Nervosa can result in very low weight.
Uncontrolled binge eating can result in higher weight,
but most people who have an eating disorder,
you wouldn't know by looking at them.
That's the nature of mental disorder.
It's in the head, and sometimes the behaviours are obvious,
and sometimes they're not obvious.
But eating disorders are not defined by weight.
So it's abnormal eating behaviours, anxieties about eating
that you're looking for rather than judging by weight.
However, if somebody's weight is changing rapidly,
that's another sign that something's happening.
Something's going on,
that somebody's changed their eating behaviour in some way,
or that they're doing other things
to influence their weight and their shape.
So a sudden change in weight, either
loss or gain, might tell you that somebody is
struggling with their eating behaviour,
even if they're in the healthy weight range.
My child cannot eat certain foods due to an allergy - could this trigger an eating disorder?
Medical and physical illnesses
that affect eating behaviour are very common,
and some of them require you
to be more attentive to your eating.
So examples would be food allergies, type one diabetes
where you're having to count carbohydrates.
These things all require children
and young people to focus on food in ways
that they wouldn't normally have to.
They can't be spontaneous about food in quite the same way.
And that increased focus and care and attention to food
and having to count things
and having to measure things does put some people
at higher risk depending on whether they
have other risk factors.
So if your child is somebody who has a tendency
to get very caught up in the details of counting
and measuring and following rules, they're much more likely
to get: A, they're much more likely
to control their eating well rather than being impulsive
and chaotic about it.
But also there is a slight tendency to be at greater risks
to become a bit obsessed by it.
And that's what you need to be mindful
of is has this tipped over from good control
of whatever the physical condition is,
whether it's an allergy or diabetes, into something
that's bordering on anxiety driven
or becoming obsessional about food
and eating to the point
that it is causing your child either impairment,
so they're not able to do normal activities,
they're not able to eat with friends or go out
or participate in sport
because they're so worried about whether they're going
to get their eating right or it's causing them distress.
They're spending hours thinking about
or worrying about whether they're getting it right or not.
So that's, I think something to be mindful of is that
because they've got to pay this extra attention to
how they eat, there is an associated risk
that they will become anxious about it.
And if your child is prone to anxiety, not everybody is,
then that's something to be aware of
and to make sure that you are in conversation
with them about that, whether they're worrying about it
and that you can share their worries with them
and even help them with it.
What role does anxiety play in eating disorders?
Specific anxieties in eating disorders is
what distinguishes one eating disorder from
another eating disorder.
And I'll go into more detail about this in some other
responses when I describe each
of the individual eating disorders.
But as an example,
the central anxiety in anorexia nervosa is a
fear of becoming fat.
And that anxiety organises the behaviour, the thoughts,
feelings, fears of that person who's got anorexia nervosa.
And that's different from, for example, in bulimia nervosa
and binge eating disorder, where that fear
of becoming fat may also be associated
with an anxiety about losing control
over their eating behaviour.
Again, all of these behaviours can occur across eating
disorders, but it's what's the central anxiety
that's driving somebody's eating behaviours.
What you need to try and understand,
sometimes you can infer it from their behaviour,
but sometimes they're able
to actually directly articulate it
and share what it is. In ARFID - avoidant restrictive food intake
disorder - the anxieties are not about weight and shape.
They're not about fear of fear of weight gain,
they're not about appearance,
but they might be, for example, about a fear of choking
or a fear
of eating foods, of particular textures with smells,
other types of anxieties that might manifest
and lead a child to avoid eating is what's central
to ARFID.
And that's what distinguishes ARFID from anorexia nervosa,
bulimia nervosa, binge eating disorder, purging disorder,
and the other eating disorders.
So trying to understand what the concern is
and what the anxiety is
behind somebody's eating disorder is really helpful in terms
of helping understand what's driving their behaviour,
but also how to help them.
It's worth saying that most mental disorders are associated
with some sort of change in eating behaviour.
So for example, in depression, people lose their appetite.
Often it's one of the core symptoms.
Anxiety can make you lose your appetite,
but there isn't an anxiety about eating in those other
mental disorders, and that's what distinguishes this group
of eating disorders from the other types of mental disorders
that can affect eating behaviour.
What could the impacts of an eating disorder have on my child's growth and development?
A child's growth and development is only going
to be impacted by an eating disorder if there's some sort
of malnutrition and depending on what stage
of development they're at.
So if your child develops an eating disorder
after they've completed puberty,
and this is a rough rule of thumb, but for girls, that means
after their periods have started and for boys
after they've had their growth spurt,
then the impact on their growth
and development will be minimal.
There are other risks at that point,
but not really on growth and development.
So the risks for growth
and development perspective really all come pre-puberty
and only if malnutrition is prolonged.
So that's why it's another reason to make sure
to get somebody to treatment if they have got signs
of significant malnutrition.
And obviously that's one of the criteria for saying
that something's reached clinical significance that you need
to go and get help from a healthcare practitioner.
So malnutrition can be either in terms
of quantity or in terms of range.
So when somebody's malnourished in terms of quantity of food
that they're having, then that will be evident
because they'll become thinner.
And as you lose weight,
your body goes into conservation mode.
And one of the things that it conserves is growth.
So for example, children
who are bought up in famine conditions have relatively
stunted growth and delayed puberty in order
to conserve energy
and growth is considered expendable at the expense
of keeping the rest of your body organs alive and kicking.
So if somebody stops growing as a result of
malnutrition, as a result of being at a low weight,
that will also delay the age at which they go into puberty
and is a sign that some intervention probably is needed
for their nutritional status.
In terms of range, that's a bit more complicated.
If your child is only eating in a very narrow range of foods
that might be associated with
what we call micronutrient deficiencies.
So specific types of vitamins
or particular food groups are excluded from their diet,
resulting in malnutrition that may not have a direct result
impact on their growth as such,
but it may impact other aspects of their health.
So for example, their bone strength
or the development of their muscles and so on.
So malnutrition is something
that needs medical intervention.
It's part of the diagnostic criteria
for avoidant restrictive food intake disorder, for example,
is malnutrition and would be a reason
to go and see a clinician.
The good news is that young people's bodies are incredibly
resilient and flexible, and if you correct malnutrition,
Your body tends to catch up.
So if you have got growth impairment as a result
of an eating disorder or feeding disorder and it's corrected
and it doesn't last too long, then the chances are
that you'll get back onto your original growth trajectory
and be able to, as it were, bounce back.
And we see this all the time with physical illnesses
that impact children, that growth stops while they're ill
and then it restarts
and with extra speed
to catch up back to where they should have been.
And it takes really chronic illness
to deviate your growth trajectory permanently.
So you can be ill for four or five years
and still catch up on growth and development.
So it's not all bad news,
but it is a reason to get medical help.
Can an eating disorder cause other health problems in the future?
There are long-term risks associated
with an eating disorder, but it does depend on whether the
eating disorder persists or not.
So living with a chronic eating disorder
that's not responded to treatment
can have significant impacts on health
and as I'm sure you know, can result in death -
can result in premature death.
And anorexia nervosa is one
of the deadliest illnesses that we have
among the psychiatric disorders,
you're six times more likely on average to die
as a result of anorexia nervosa than by not having it.
But the other eating disorders also carry long-term risks.
So bulimia nervosa, purging disorder, misuse of
laxatives, repeated vomiting,
they can all have impacts on health in the longer term.
If successfully treated, the long-term
risks can be minimal.
Almost all risks can be reduced almost entirely.
The exception might be concerns about anorexia,
prolonged low weight, whether it's as a result
of anorexia nervosa or as a result of ARFID.
Sometimes of ARFID are associated with low weight.
Prolonged low weight can have a longer term
impact on bone density.
So it's worth being aware of that.
And there are treatments available for adults who have got
thin bones, osteopenia
or osteoporosis, if that has been a consequence
of having been ill in the longer term.
And it's one of the reasons that we measure young people's
bone density after they've been ill
for more than six months or a year.
Other complications in the longer term,
prolonged vomiting can damage the lining of your stomach
and the lining of your gullet, the oesophagus,
and can also damage teeth
because the acid can wear away the dental enamel.
So that's one of the risks that we look out for
and dentists are very much aware of
that potential impact is also sometimes a way
that people detect that somebody's got eating disorder is
from the impact on their teeth.
Other long-term complications are relatively minimal.
As I say, the key thing is to do
with whether somebody's recovered or not.
If somebody's recovered, the long-term damage is likely
to be relatively minimal,
but there are obviously long-term complications associated
both with low weight and with high weight.
I think my child has an eating disorder - how do I get professional help?
So eating disorders are best treated by
what we call a multidisciplinary team.
That's a team of clinicians where there are different people
with different professional backgrounds.
That might include psychiatrists, psychologists, nurses,
dietitians, various types of therapists depending on
what sort of intervention is needed.
So you really need to get
to a specialist team if at all possible,
because the evidence suggests that if you go direct
to a specialist team that the likelihood
of getting in early, getting the right treatment early,
not needing hospitalisation and so on,
and the outcome generally tend to be better.
That can depend
how easily you can get to a specialist team.
May depend a bit on where you are living.
Although in England there's now a specialist team in every
part of the country that has been trained to the same sort
of standard. Getting to these teams,
usually people go through their GP
and of course if you're not sure whether you need it,
your GP is a reasonable starting point.
A lot of teams do accept self-referrals,
so it's worth checking that out whether you can
refer yourself directly.
Schools can refer to eating disorders teams as well.
That's another way into services, particularly
through school nurses, for example, or pastoral care.
So there are a number of routes to access
a specialist team if it does look
as if your child might have an eating disorder.
And the important thing is to act soon and act quickly
because the earlier we can intervene, the better.
If you do go and see your GP
and your GP says nothing to worry about, it's just a phase
and that's not uncommon.
It's worth looking at the BEAT website.
BEAT is the UK's eating disorder charity
and they have some leaflets that they provide for parents
with guidance on the sorts of questions
and the sort of information to ask your GP
and that you need to be armed with in order to access care.
But it's also, of course a useful checklist for you
to know whether your right to be worried.
So that's a tool that's designed for parents to try
and help them them get the right sorts of decisions out
of clinicians about accessing care should they need it.
My child tells me I have nothing to worry about, should I trust them?
If you are worried about
your child's eating behaviour
and think that they might have eating disorder thoughts
or worries in their head
and you are telling that from their behaviour
and they say nothing to worry about, mom, I'm fine.
Or Dad, I'm fine. Back off.
I think my response would be, trust your instincts.
You know your child, you know when something's not right.
If there are other signs that something's wrong,
they're moody, they're irritable,
they're changing their behaviour in other ways.
These are all can all be early signs of an eating disorder
and it is the nature of eating disorders,
some types of eating disorders, particularly
to be secretive, to not want other people involved
eating disorders, cut young people off from their support
and from the real world by telling them
that if they do certain things in certain ways
and stick to certain rules, then everything will be okay.
And breaking down that wall of isolation
that can surround somebody with an needing disorder
is a really important part of treatment.
So I'm not sure I would necessarily accept
if somebody said "No, I'm fine" if you can see
that they're not, so trusting
somebody when they're in the grip of an eating disorder
probably isn't the wisest thing to do.
And the important thing at that point is a parent is to
trust your instincts.
Be confident that you are going to help,
even if they're in the grips of something so
that they can see that they can trust you
more than they can trust that inner voice that's talking
to them.
I'm struggling as a parent, is that okay?
I don't think I've ever met a parent who hasn't struggled
with having a child with an eating disorder.
It's incredibly challenging.
Not only do you have the distress that goes
with having a child that's upset
and struggling with something,
but also sometimes you can see the
physical consequences of that.
And there's something particularly emotive, I think,
about a child not being able to eat,
not being able to eat well.
That kind of gets to the heart of what parenting
and being a parent seems to be about.
So struggling is normal,
and that's why there's so much support
and resource aimed at parents of people
with eating disorders almost more,
or at least as much as there is aimed at the young people.
And that's why we involve parents in treatment.
This is not a situation where we take your child away
and say, we'll fix your child for you.
We would expect parents to be involved in treatment
because we know that how you are
and how you are with your child is absolutely crucial,
but we also need to look after -
you need to look after yourself.
So the kind of commonest ways
that parents might struggle are
with their own mental health, getting anxious, depressed,
staying awake at night, for example.
And if you are finding that that's starting to affect
how you function, then I would encourage you
to access help in your own right.
It might re-trigger your own thoughts
and feelings about food and eating and body shape.
And again, if that starts to become problematic,
that's something to think about.
Do I need to get help about that
in my own right? It might be more everyday
struggles with how do I balance work
against my child's needs?
How do I balance the needs
of my other children against my child?
We would always encourage parents
to use the support of each other if there were two of you,
any partners, any friends, to make sure
that you are well surrounded by people who've got your back
and who are going to look out for you
and who are supportive, and who understand the severity
and the impact of what it is that you are dealing with.
The analogy of if your child was ill with a physical,
a very serious physical illness,
people would absolutely understand how challenging that is.
For some reason, mental health is still stigmatised
and people don't quite understand what the impact can be
and how severe it can be.
The final comment I'd say about looking
after yourself is about pace yourself.
In the early phases,
it can feel like it's going to go on forever.
Recovery takes at best six months, more commonly a year,
even if things go really well in treatment.
And of course there are some people
for whom treatment doesn't work first time.
So it's really important that you think long-term about
how can I make what I've got to deal with here sustainable
for me and to work for me and my family.
How can I start a conversation with my child about their eating habits?
Talking to your child about their eating
is potentially a motive,
and you will know better than anyone,
whether it's a touchy subject for them.
It's harder to talk to your child if it is a touchy subject,
but probably even more important.
If you notice that they've changed their eating habit.
That's a way in, and at
that point you can just make a comment about it.
Maybe not ask a question,
because sometimes that can feel intrusive,
but I've noticed X, I've noticed Y about your eating,
and I've been wondering whether sharing your thoughts
about what might be happening and what might be going on.
Sometimes people make those sorts
of changes when they're worried about this or that.
So making comments
and observations if your child is the sort of child
who will react defensively
or get upset if you ask them questions as such.
So that's one way of getting into it.
Weight is another issue that can be quite touchy.
For some people, it's very personal.
It's experienced personally differently by different people.
But that's another area where you might want
to explore gently,
whether they've been worried about their weight,
so you're not interested in what their weight is per se,
but whether it has become a source of anxiety for them.
Because with all these conversations, what you're trying
to get at is whether their weight, their shape,
or their eating has become a source of anxiety to them.
What role has social media played on eating disorders within children?
Social media is a mixed blessing, isn't it?
On the one hand, it's a lifeline for some people.
It's the way they stay connected
to their social world, to their friends.
People would really have struggled
during the pandemic without social media
because it's such an inherent part of
how young people relate to each other
and how they explore things like their identities,
who they want to be, who their role models
are, and so on and so forth.
But like anything that's very immediate and engaging,
and importantly available 24/7, it can have its downsides
and the amount of time somebody spends on social media
is correlated with the likelihood
of them having mental health problems, particularly
if it's displacing sleep or if it's a source of bullying,
or if they're looking at inappropriate content
or content that's feeding
existing anxieties that they might have.
There are examples of very dangerous content
with respect to eating disorders on social media.
There are websites
that promote eating disorder behaviour quite actively in a
destructive way, but those are the
exceptions rather than the rules.
But people who are very severely in the grips
of an eating disorder may be looking at some really harmful
and inappropriate content,
and that's something to discuss with a clinician about how
to help manage that.
The bigger issue, I think, is the more everyday content.
The content that is encouraging a focus on body image
in ways that are unachievable for many people,
or ways that are prescribing ways of eating
that may not be based in health and reality,
and leading to aspirations and gaps,
and making people self-conscious about themselves
and their body image
and their eating behaviour in ways
that are actively unhelpful, particularly
for growing children and young people.
And that's where I think the content can be really harmful,
particularly if your child is prone to perfectionism,
a tendency to negatively compare themselves to others.
So I think knowing some of the content of
what young people are looking at
and the sorts of material they're looking at is helpful.
And it may come up through conversations.
So for example, if you notice
that a child's eating differently,
as well as asking them whether they've got some anxieties
about it, where they've got their ideas from about what
they're trying to eat and how they're trying
to eat differently, you'll find some people are kind
of imitating particular influencers
in terms of what they eat.
But we all know that social media isn't a reality,
and you are there as a parent to provide a reality check
And to encourage them to recognise that
what they're seeing on some
of those artificial screens is not where reality is.
And a lot of eating disorders prevention work
is about media literacy.
It's helping people understand that
what they see in the media and social media is not reality,
and that it doesn't reflect reality.
How can I protect my child from the potential impact of social media?
The potential of impact
of social media is a really tricky thing to know how to deal
with because there isn't really a one size fits
all answer to that.
It's about recognising when the balance has
gone wrong in some way,
when the online world has become more
important than the real world.
And there isn't that ability to provide balance
and checks against what they might be seeing online,
which may or may not represent some version of reality
or maybe giving them some unhelpful or harmful messages.
And an example of that might be
if they're getting messages about perfect body image,
that you can provide some kind of reality check in terms of
body positivity or being able to reassure them that
how you look is not the be all and end all.
And those messages can be quite different for girls
from boys in terms of what
social media is telling them that they should be doing.
If you are aware that your child is looking at problematic
material, that's
where the first starting point is communication,
talking about it so
that you can understand whether it's feeding into
anxiety in some kind of way.
And again, you might pick up clues about that
by their behaviour about the way they're behaving,
whether they become overly obsessed
with their appearance in some way,
where they've changed their eating as if they're kind
of imitating or following some sort of new set of rules
about how to eat.
Those would be an opportunity
to open a conversation up about it.
And then at the more extreme end, if you become aware
that they accessing actively harmful material, you may need
to feel that you need to step in more, that you need
to take some sort of control.
And there are increasingly ways of parents being able
to exert control over the content of
what young people are accessing online.
Social media companies are thinking about this quite a lot
as well, and starting to put alerts and warnings.
Did you really mean to look at this?
And so on in a way of trying to help people to
steer away from the more harmful content.
But it's tricky to get that right
because I think you might think, oh, I want
to take my child's phone away,
but you need to balance that against,
am I cutting them off from their only source
of social support by doing that, and/or
am I going to break down my relationship with them
by taking away something that's so important
and meaningful to them?
Because phones have unfortunately become
essential to all of our lives.
So I think that's where,
and having a conversation with a clinician about
that might be a helpful way of thinking about it.
Is there a sensible way of dealing with this?
Because you don't want somebody to be able
to access actively harmful content.
But on the other hand, if you can see
that somebody's online world has become actively toxic
and is feeding their eating disorder, that may be something
that you need to take action about.
Has social media led to an increase in children with eating disorders?
Social media is blamed for a lot of things.
There isn't direct evidence
that social media is causing an increase
in eating disorders.
The overall incidents
and prevalence of eating disorders hasn't actually changed
very dramatically since the 1970s.
Younger age groups are more vulnerable
now than they used to be.
So the only groups that we're seeing rises in prevalence
of eating disorders among are younger
children and among boys.
And it may be that social media has some role in that
and the access that young people have
to content now that is focused on body weight and shape
and the sorts of values
and what we call the thin ideal that is thought
to contribute to the development of eating disorders.
But it's by no means the only culprit.
There are plenty of other explanations
for why there may be increases
among children in society as a whole.
We've become much more nutrition conscious.
Food is covered with information about nutrition,
calorie labelling, calories on menus, posters about weight
and shape, and the pandemic raised everybody's
concerns about weight because it was recognised
as a risk factor in the older population.
So there's been quite a bit of concern about their potential
negative impact of those anxieties in the population
as a whole about food, eating on weight,
and whether that might have impacted children.
So social media is part of a complex picture.
It's certainly not a direct cause and effect,
but it's important to be aware of the sorts of influences
that your child is subject to.
And that's why you as a parent are so important
because you are providing the immediate environment
that can help balance
and mitigate those wider societal concerns
and anxieties that your child might have.
How can I better understand my child's eating behaviours?
Everybody's different when it comes to eating behaviour.
There are lots of factors that influence it,
and not all of them are environmental.
They're not all things that are in our control.
For example, genetics vary enormously in terms of
your appetite and well,
there's quite a famous experiment called the marshmallow
test where children are put into a room,
I think they were about four
or five with a marshmallow in front of them.
And the experimenter leaves the room
and says, if you don't touch that marshmallow,
then you can have two when I come back.
And some children can not touch it
and some children can't not touch it.
There's a huge, and they time how long it takes
before they eat the marshmallow.
So huge variation in terms of appetite.
And that particular test is testing something
called food responsiveness.
So that's how, if an example of that would be buffets.
Some people when they're faced with a buffet
or there's food in front of them,
they just can't not eat it.
The other component of appetite is what's known
as food satiety.
So how good you are at recognising when
you're full and stopping eating.
And again, it's quite strongly genetically driven,
but it's also something you can learn.
It's something you can learn to self-regulate,
to recognise your appetite responses,
to recognise when you are feeling full.
And it's an inherent part of what we call intuitive eating
and to learn to recognise your own satiety cues.
And it's really important
that children are given an opportunity to learn those things
for themselves, that they're given an opportunity to learn
to self-regulate, to know when to stop.
And if you as a parent are too overly focused on their,
or you are controlling their intake,
that doesn't give them the space to do
that learning in the same way.
So whilst it's helpful to obviously know
how your child is doing nutritionally,
you are obviously going to be involved,
particularly when they're younger in deciding
what they're eating and roughly what sorts of quantities
and your best place to do that.
It's also important to give them a little bit of space
to learn to self-regulate, to learn to
recognise their own satiety cues and so on.
So that's one component
of eating behaviour is are they getting
their self-regulation right?
Are they learning self regulation
in the right sort of way?
And can I help with that? Can I nudge, can I remind them?
Have you had enough of you?
Are you sure you can't manage a bit more?
Depending on which end of the spectrum they are from a
satiety perspective, then eating behaviour can
become a way of expressing
and learning about self-control in a broader sense.
So it can become a way of saying this is, I want
to do things in a particular way
and I want to do it in my way.
And of course, depending again on how worrying that is,
that can become a battleground.
And it's important for you as parents to
not let it become a battleground, not get into battle
with your child if you can, around food,
because that's when it starts to become an emotive problem.
So typically toddlers, for example,
will have fights over whether they will
or won't eat specific types of foods.
But it also, again, that can become manifest
during adolescence when young people are wanting
to control their own eating behaviour
and not be controlled by you as an adult.
If it does start to become an emotive issue, if it starts
to become a source of anxiety, then
that's a different issue again.
And you can tell from somebody's eating behaviour
what the nature of that anxiety is.
So if somebody, for example, has anorexia nervosa
and their core anxiety is about fear of weight gain,
they're likely to be avoiding the sorts of foods
that are fattening in inverted commas.
So typically that would look like cutting out foods,
cutting out sugars, cutting out carbohydrates, more extreme.
And so they would avoid certain types of foods.
If they have ARFID
and the anxiety is a fear of choking
or a fear, a difficulty with managing foods
of a particular texture or colour
or some other sensory aspect of food,
then they're eating behaviour will look entirely different.
And so you can pick up clues to what the anxieties
and the thoughts are or the rules indeed in their head
that might be driving their eating
behaviour from what they're eating.
But it's important not to be too intrusive
and too overly focused on their eating themselves,
giving a bit of space
and recognising that food is a very common source
of experimentation for children
and a way of finding out who they are, how they want
to feed themselves, and they need
to learn in the longer term how to feed themselves.
And food varies enormously by family, by culture.
So there isn't a right way to eat.
And that's why your task as a parent is
to help a child find a way to eat that they are happy with
and that works for them and for their identity
and who they want to become in the longer term.
And that may include becoming a master chef,
or it may be some people have got no interest in food
whatsoever and they just need to be reminded
that eating food is a habit.
It's just got to happen in a regular way,
like filling your car with petrol,
otherwise it'll stop working.
My child has an eating disorder - is there anything I should avoid saying or doing?
It is difficult to give one size fits all answers
to what's upsetting
for a child when they've got an eating disorder.
But if they've got anorexia nervosa or bulimia nervosa
or binge eating disorder, it's likely
that they're upset about their body weight
and their shape in some kind of way.
So commenting on weight and commenting on shape,
and sometimes even commenting on food is probably unhelpful.
And what we usually advise parents is to steer away
from food related conversations at the meal table
in particular, and to save those for the meetings
with your clinicians or your therapists.
So that one of the purposes of treatment is to say, well,
once a week or however often you meet your clinician,
that's when we'll talk about food.
We'll plan for what the food is going to look like.
Everybody knows what to expect for the coming week,
and then we don't have
to talk about it the rest of the time.
We can find other ways of
distracting, having more normal conversations
and building life as being one in which food, weight
and shape are really not the most important things
because ultimately that's
what helps support recovery from an eating disorder is the
rest of life becomes more important than
what you you're eating or what you look like.
My child's eating disorder is affecting the rest of my family, what can I do?
For most children and young people, we try
and involve the whole family in treatment, and that's
because we know that eating disorders do impact family life.
We don't bring everybody along
because we think that the problem is the family.
We bring everybody along
because everybody might have a role in helping
the young person in their family
recover from an eating disorder.
Everybody in the family is likely
to be worried about the person who's got an eating disorder
in the family, and it's important that we hear about that
and there's a space where they can talk about it
and different people may be impacted in different ways,
and it's important that clinicians can pick up on that
and address it if necessary.
If it does look as if your other children are
really struggling, then it's important
that they get help in their own right.
But a way of preventing that is
to bring it a bit more out in the open
during family meetings, if at all possible.
If your child's treatment is not involving the whole family,
so for example, if they're an older adolescent
and so on, usually clinicians would find a way
to talk to you as parents about how you can support
your child with what they're working on,
but also how you can think about other
family members as well.
So I would suggest that you try
and talk to the clinician who's involved in your treatment
if you are worried about other members of the family.
What is 'anorexia'?
Anorexia actually isn't the full term for the illness.
That's an eating disorder.
Anorexia Nervosa is the full term,
and that's without going off into too much detail
because anorexia on its own means loss of appetite.
And in anorexia nervosa, which is the illness,
that's an eating disorder,
people haven't lost their appetite.
They've just determined
or decided sometimes
to override their body's natural wish to eat.
So it's a very different kind of illness.
And it is an illness that is driven by
determined weight loss
and a drive for thinness is the central psychopathology driven
by a fear of obesity, a fear of weight gain.
And the diagnosis of anorexia nervosa is
we're not just talking about normal anxieties
that anyone might have about wanting to be healthy
and wanting to not be overweight,
that we get regular messages about how dangerous that is.
We are talking about an overriding belief that being
a healthy weight is the worst thing in the world,
that almost that you'd rather die than be a healthy
weight or overweight.
So it's become so powerful as a thought
that it can get to the point of bleeding
to illness in its own right.
So behaviourally, this manifests as significant weight loss
and avoidance of foods that are perceived as fattening,
and it's driven by a distorted, a body image, a belief
that you are fat
or overweight, even though everybody else can
see that that's not the case.
You don't have to be thin to have anorexia nervosa.
You can have that determined to drive for thinness
and avoidance of foods and catastrophic
and dangerous weight loss at any weight.
So it's not determined by weight, it's determined
by thoughts, feelings, and behaviours.
What is the difference between restrictive anorexia and binging and purging anorexia?
In restrictive anorexia nervosa,
a person controls their weight
and indeed their weight loss
through restricting their food intake.
Hence the name. Sometimes that's also accompanied
by excessive exercise as another way
of burning off calories.
But that picture overall is
what restrictive eating anorexia nervosa looks
like. In some people,
anorexia nervosa is also accompanied by bingeing
and purging, and bingeing
and purging is when a person
with anorexia nervosa feels like they've lost control over
their appetite and they've eaten more than they want to.
And sometimes that might be objectively more than they want
to, and sometimes it's just subjectively like they feel
they've eaten much more than they were,
but the idea is that they've lost control.
And then they would take some action in order to compensate
what we call compensatory behaviours for having over eaten.
And that combination of bingeing
and purging in the context
of somebody who's got this overriding drive for thinness is
what we would call binge purge anorexia nervosa.
And there's a lot of similarities between that presentation
and bulimia nervosa.
The reason for making this distinction between restrictive
and binge purge anorexia is that we think there are likely
to be different risk factors, different genetic profiles
for people and psychological profiles who might be at risk.
There's a potentially different course of illness
and they might respond to slightly different treatments.
So that's the reason for making that distinction.
What are the signs and symptoms of anorexia in children?
So anorexia nervosa is characterised by a drive
for thinness, a determination to lose weight, and
therefore the signs
and symptoms of that are
that somebody is doing weight loss behaviours
that looks like avoiding foods that they perceived
to be high in calories.
It might look like monitoring calories on food,
sometimes even weighing out or measuring foods,
and it would look like trying to find ways
of reducing food intake in whatever sort of way.
So that might look like disguising food or hiding food
or being secretive, throwing food away, for example.
Anything to avoid eating food
and then in more extreme ways, going
for long periods without eating anything at all.
So just cutting back and back more
and more with the amount of food that's being taken in
as a way of trying to drive weight loss.
Depending on whether it's restrictive
or binge purging type of anorexia in nervosa,
it may be accompanied by other food
avoiding type behaviours, so
that might look like exercising to burn off calories.
It might look like finding other ways
to eliminate calories from their body, whether that's by
vomiting food after eating it, whether it's
by taking substances such as laxatives in order
to induce elimination
of food from the body.
And then there were some more ominous
variants of eating disorders where people might manipulate,
for example, their medicines in order to
facilitate weight loss.
But the driving psychopathology behind all
of it is a determination to be as thin as possible,
and that's the core psychopathology of anorexia nervosa.
What causes anorexia?
The causes of mental illnesses of any kind are complex.
There isn't a single answer.
There's a combination of factors.
We often think about the bio-psycho-social
causation of eating disorders.
So there are biological factors
that might look like genetic factors.
It might look like individual
predispositions of various kinds.
The psychological being different personality traits,
different risk factors from that perspective.
So an example of that might be perfectionist traits,
for example, or a tendency to, we call
what we call cognitive rigidity.
The idea that you have very black
and white thinking about things
and that rules are absolute rather than being able
to see things in shades of grey.
And then there are social risk factors.
So that might be specific triggers, some sort
of event might've happened that is distressing
or traumatising, or it may be more
a developmental exposure to things
that somebody is finding psychologically challenging, such
as friendship groups, for example, being quite difficult.
Being rejected by your friends
is quite a commonly cited figure,
a commonly cited risk factor.
Or there's a lot of talk isn't there about social media
and how that can drive a focus on body shape and appearance
or picking up unhelpful ideas.
So we tend to talk about a jigsaw
and everybody's jigsaw of risk factors looks different.
There's quite a lot in that jigsaw
that you won't be able to change.
So for example, if you know you carry genetic risk
for something, it's really important to understand
that those genetic risk factors are there.
And genetic factors probably account for,
depending on which eating disorder, somewhere
between about 40 and 70% heritability.
There are things you can't do anything about like that
about, but it's important to know you carry that risk.
So in the same way that if you know you're at higher risk
of say, cancer
or heart disease, you also know there are things you can do
to mitigate that risk.
And that's the bit that we can intervene with.
So within any individual child, what we try to do is come up
with a formulation about what are the things
that are contributing that may be contributing
to this person's eating disorder,
and which of those things are keeping the problem going,
which were things that happened in the past
and there's nothing we can do about,
and what are the things that might be keeping it going?
And they're the things that we often can intervene with.
So we don't talk about cause
and effect in a direct linear sense.
We think about the whole picture
from individual up to society, biological,
psychological, and social.
And everybody's individual story is different.
How common is anorexia in children?
So the peak age of onset for anorexia nervosa is
between the ages 15 and 25 roughly.
Although it can occur in younger people
and it can obviously occur in older people as well.
Even at that highest risk peak age, the prevalence of,
or the kind of number of people in the population
with anorexia nervosa is probably around
roughly half to 1% of the population.
And that's because once it's established,
it doesn't go away quickly.
Not like a cold. But the number of new people
with anorexia nervosa
who present every year is still relatively low.
That's what we call the incidence of anorexia nervosa.
And so it's not what we would call one
of the common mental illnesses.
How can I tell the difference between a small appetite and anorexia?
So in medicine, anorexia means small appetite,
and that's different from anorexia nervosa,
which is the mental illness.
That's one of the types of eating disorder.
Anorexia nervosa is not driven by a small appetite,
although some people can learn
to override their own appetite drive, and
after a while, particularly if you're in ketosis, your
body's recognition of appetite does get diminished.
But anorexia nervosa doesn't start off as a loss
of appetite or even as a small appetite.
People do vary in terms of
what their appetite's like
and whether they've got a strong appetite.
And a poor appetite can lead
to problems
from a nutrition perspective, that is one of the subtypes
of arfid is driven by a lack of appetite.
So a variant of arfid is defined
by having a poor or low appetite
and being unable to recognise your satiety cues.
Anorexia nervosa is different.
Anorexia nervosa onsets with people who've had
a relatively normal relationship with food or appetite
and whose eating behaviour has changed
because a thought has come into their head
that losing weight is desirable,
and that's very different from a constitutionally poor
appetite.
How is anorexia diagnosed?
Diagnosis of anorexia nervosa is made
through talking to people.
It's gathering a history usually from parents
in terms of what they've noticed.
When did they notice a change of eating behaviour?
Is it a change from usual, importantly
because this is about the onset of an illness
and there are characteristic behaviours
that parents will describe.
So for example, I noticed last Easter
that she didn't eat her Easter eggs,
and then I noticed that she wanted to go
to the gym on a more regular basis and so on.
So there's a very consistent narrative about
that we hear from people,
and it sounds very similar from one person to another,
and often at the point
before they get to clinical care,
it has resulted in weight loss
because that's one of the cardinal features
of anorexia nervosa is determined drive for weight loss.
But there are often signs
and symptoms when you ask that go back several months
or even longer. Parents aren't always aware of how
their child is feeling about their body
and their body image, although they may have picked up clues
by watching a young person's relationship
with themselves in the mirror, whether they're willing
to change in changing rooms, those sorts of things.
But to get to those thoughts
and feelings side of things, you really need
to talk directly to the young person.
So as part of an assessment,
you would always have a conversation with a young person
about their thoughts
and feelings about themselves, about their body
specifically, and the extent to which concerns about weight
and shape have become primary in their mind,
the most important thing to them.
How important relatively is your weight
and shape in terms of how you see yourself as an individual.
And those are the core characteristics of anorexia nervosa.
To say that it's become an illness,
usually we would want some evidence
that it's clinically significant in terms
of the impact on their physical health as well.
So you would get a history that somebody,
parents don't always know what their child's weight is,
but they would usually notice if they'd gone down a dress
size or a T-shirt size or trouser size.
Sometimes we'll have old weights
and you'll be able to say, lost
however many kilogrammes in however many months.
But that documentation that those thoughts
and feelings have actually resulted in behaviour change
and change that is visible
and starting to have an impact on health is the other thing
that you would do.
And of course, for children, that weight can only be
interpreted in light of their height.
So we would then do a bit of maths
to work out whether somebody is underweight
or still in the healthy weight range.
Although the diagnosis
of anorexia nervosa is not made on the basis of weight.
What are the treatments for anorexia in children?
The treatment for anorexia nervosa.
The best evidence-based treatment
for anorexia nervosa is a family approach, a family therapy
approach that is focused on the eating disorder.
So not a general family therapy approach,
what we call a systemic family therapy approach, where we're
encouraging communication between family members,
but one where there are specific
strategies that are used to help parents
support a young person become nutritionally rehabilitated,
but also then begin to renegotiate responsibility
around their own eating behaviour
again. Of course
that requires a conversation about communication.
It requires family members to work together
to understand each other's points of view about things,
to listen to each other, but it's all with the purpose
of helping a young person address the thoughts
and feelings that are driving their eating disorder.
So that's the first line intervention for most people.
And even if you are a single parent,
that would usually be the first starting point for treatment
and likely what you'll be offered.
Occasionally, there's a very good reason why a family-based
treatment approach is not going to work for whatever reason.
And of course, the older adolescents get,
the more they have choice about what they're willing
to accept in terms of treatment,
and then you might move to a more
individual treatment approach.
The reason we start
with a family approach rather than an individual approach is
that when a family treatment approach works,
it works quicker and it's therefore more effective
because we know that the earlier somebody responds
to treatment, that determines their outcome
and their treatment prognosis.
So individual approaches are available.
The two commonest ones
that are used are something called adolescent focused
psychotherapy and cognitive behaviour therapy.
And those are working with a young person
to think about the way that their thoughts and feelings
and in adolescent focused thoughts, some
of the developmental challenges
that they're facing
have become entangled with their eating behaviour.
If a young person is having an individual approach,
it would be quite usual for their parents also
to have some sessions to think about
how they can support their young person.
If those first line interventions, the family approach,
number one, or the individual approach number two,
isn't enough, then there are all sorts of ways
that we can intensify treatment.
But usually we would start with one of those
and then say, well,
is somebody responding in the way that we would hope?
And if not, why not?
And depending on how we've understood the problem with
that young person or what they're struggling with,
what the clinician who's working with them and the family
and young person think is getting in the way of treatment,
then we may be able to
suggest additional
interventions that might help with that.
So for example, sometimes we might suggest a medication
that would help, sometimes we might suggest some separate
sessions for parents to help them think about how they can
approach the situation differently.
Sometimes we might suggest some specific work
for the young person on a particular problem, say anxiety
or obsessionality and so on.
And then sometimes if things they're really struggling,
we might think, oh, actually you need a more intensive
treatment, and that could look like a day treatment
programme, or it might look like a hospitalisation.
What support can parents offer to children who are experiencing anorexia?
Parents are absolutely vital to children
who are experiencing anorexia nervosa.
The first thing is about helping them get to treatment
because often somebody
with anorexia nervosa isn't particularly looking for help.
Anorexia for them sometimes is the answer,
and they don't want people to interfere or intervene.
So recognising when a young person does need help is the
first thing a parent can do to support their child
and involve the right people in
that, work out who needs to be involved,
and importantly, who doesn't.
If you have got your child to help
and a diagnosis of anorexia nervosa has been made,
the likelihood is that you've been involved directly -
you are going to be involved directly in treatment,
particularly if they're under the age of 16.
Children have more choices when they get to 16 and above,
but assuming that you've been involved in treatment,
your clinician will guide you in terms of
how you can be most helpful to your child.
But in the early phases of the illness, generally speaking,
parents are encouraged to take responsibility from the child
who is recognised as essentially being out of control,
having lost control over their own
anxieties about eating.
And so we support
and scaffold parents
to become more effective against the incredibly
powerful driver that anorexia nervosa can be
once it's taken hold.
And so that parents stepping into that role
and very early and very effectively is absolutely key
to turning things around that early treatment response.
And being able to put a stop to some
of those more harmful eating behaviours is really the first
stage of treatment and where parents are so important.
So just essentially taking over, recognising
that your child is no longer able to control
what they're doing. As time goes on,
parents will be encouraged to hand responsibility back.
And there, the important thing is to find ways
of talking about that
and communicating about it so
that the eating disorder doesn't kind of trick you into
reassurance or assuming
that things are okay when actually your instincts are
telling you're not.
Your child isn't ready yet.
So being open-minded
and listening to your young person about what they want to,
what's important to them, but also balancing
that against your parental instincts
to protect them from this awful illness.
How do I get that right?
The balance of how much responsibility
to give my child or not?
And that whilst your child might be telling you
that they hate you and that they are absolutely
furious with you, is actually the best way you can support
them because you are staying calm
and effective as a parent in the face of
a potentially dangerous illness.
And then as time goes on, your task really is to
support them to discover
who they are in themselves without their illness
and rediscovering a kind of sense about who they are,
who they want to be, and an identity
out the other side of their illness.
Because anorexia can take over
to the extent it convinces you
that it's the most important thing about who you are
and your weight and your shape is the most
important thing of who you are.
And that journey of rediscovery
and identity afterwards can take many forms.
And as parents supporting your child with allowing them
to explore who they are and who they want to be,
and their identity is
what those final phases of treatment look like.
So you are absolutely key to, it's the sort
of accelerated version of development, if you like,
condensed into a short period of time.
And actually now, I know it sounds bizarrely paradoxical.
Many people find that journey, parents
and young people going on that journey together can be
extremely powerful.
And many people say that they're glad that they've been
through it in terms of what they've learned about themselves
and how they've learned to think differently about
what matters and what's important to them.
So parents, supporting young people on that journey
of discovery is an absolutely vital part of treatment.
What is bulimia?
Bulimia or bulimia nervosa, as its full name should be, is
an eating disorder in which there's a
similar kind of focus on wanting to be thin
and being unhappy with your body.
But the difference from anorexia nervosa is
that the core feature of bulimia nervosa is the fact
that despite wanting to be thin
and to eat very little, people
with bulimia nervosa can't control their appetite.
And so what happens is that they have binge eating episodes.
Binge eating episodes are characterised
by a loss of control.
Overeating. I'm not just talking about overeating,
like I've eaten too much, and I feel bad about that.
I'm talking about not being able to stop.
And for some people it's almost, it can kind of go into
almost a dissociative state we would call it,
or into a frame of mind where
you just keep going until only being sick
or something else will stop you eating.
So it's a real loss of control.
And because the psychopathology of bulimia nervosa
is involved with thinking about
being unhappy about your body weight
and wanting to be thinner
because the person with bulimia nervosa perceives themselves
to have eaten too much, they then feel driven
to do something to compensate for that.
So often people think bulimia nervosa is characterised
by self-induced vomiting,
and of course that can be one of the symptoms.
That's one of the ways in which people
with bulimia nervosa can eliminate the food
that they feel bad about having eaten.
But it's the binge eating
and then followed by compensatory behaviours of some kind,
which characterises bulimia nervosa.
And that compensatory behaviour might be self-induced
vomiting, but it might be the need
to compulsively exercise afterwards,
or not allowing yourself to eat afterwards.
So fasting to compensate for the fact that you feel
that you've eaten too much or taking some other kind
of medication to eliminate the food that you feel
that you've overeaten.
And I think hopefully inherent in that, you can understand
that one of the things that often happens in bulimia nervosa is
an intense feeling of shame
and guilt about these loss of control eating episodes,
because it's the very opposite of what the person
with bulimia wants to be doing.
So that's the core of bulimia nervosa is,
and it's extremely distressing, but often very secretive
because it's so bound up with feelings of shame and guilt.
What are the signs and symptoms of bulimia in children?
So the characteristic of bulimia nervosa is
binge eating, which is a loss
of control over your eating behaviour.
And for it to be considered pathological, that has
to happen fairly regularly.
So more than once a week for a significant period
of time, more than two months.
So it's a consistent behaviour. It's not just a one-off.
And then because it's associated with strong feelings
of guilt and shame about having over eaten, the person
with bulimia nervosa will then compensate for that
by feeling the need to eliminate that
food from their body in some way.
And they might do that by what we call purging.
Purging is any form of eliminating food from your body.
So it might be by inducing vomiting.
It might be taking a medicine such
as a laxative, for example.
But you can also compensate for excessive energy intake
by fasting or not eating for long periods of time,
or by excessively exercising,
and that can in itself become compulsive.
So the core features of the signs
and symptoms of bulimia nervosa are binge eating, followed
by compensatory behaviours for a consistent period of time,
and on a regular basis.
These behaviours are often hidden,
so they can be very hard to spot.
By definition, a person
with bulimia nervosa isn't severely underweight,
so you can't tell by looking at somebody whether
they've got bulimia nervosa.
If they were severely underweight,
they would have a diagnosis of anorexia nervosa.
But the fear of weight gain
and the dissatisfaction with the body weight
and shape can be as intense as it is for somebody
with anorexia nervosa.
What causes bulimia?
The causes of any eating disorder are complex
and there's no direct cause and effect,
and there certainly isn't a single cause.
We tend to think about a jigsaw of factors
that come together for any one individual,
and those factors can look different from
one individual to the other.
But there are some things
that we can say about the risk factors for bulimia nervosa
that are different for example, from the risk factors
for anorexia nervosa.
So although there are genetic factors that will contribute
to bulimia nervosa, they're different from the genetic
factors that will contribute to
anorexia nervosa in some respects.
So people with bulimia nervosa are more likely
to have a high appetitic drive, whereas some people
with anorexia nervosa have a very low appetitic drive.
In other words, they have a tendency
to overeat rather than to undereat.
And it's that overeating that can feel like
and can become out of control.
But some of the psychological characteristics are very
similar to anorexia nervosa.
So they're often driven by feelings of low self-esteem,
of having negative mood,
feeling very negative about yourself,
poor self-esteem. Depression is very strongly associated
with bulimia nervosa.
And then there are other sort of characteristics that
can occur in somebody with bulimia nervosa, such
as high levels of impulsivity.
And so there are a different set of other type
of mental disorders that can be associated
with bulimia nervosa.
That again, looks slightly different from what you might see
with somebody with anorexia nervosa.
So there's more likely to be an association with depression,
more likely to be association with addictions
of various kinds,
and more likely to be associated
with other disorders related to impulsivity such
as attention deficit hyperactivity disorder and so on.
So it's a different set of factors. Central
to bulimia nervosa,
as for anorexia nervosa is this overvalued idea about weight
and shape because the guilt and the shame about,
and self disgust, I think is probably a discussed
as a very strong emotion in people with bulimia nervosa.
Some of that comes from values to do
with the importance of weight and shape.
So all of the factors in society
and elsewhere that drive people to feel ashamed
of themselves are also relevant for people
with bulimia nervosa.
How common is bulimia in children?
So bulimia nervosa doesn't really happen in younger
children, and there are biological reasons for that.
Some of the what we would call social emotions rather
than basic emotions.
So a basic emotion would be something like anxiety, fear,
or experience of threat.
Whereas a social emotion is to do with relationships.
So guilt and shame where you need to see yourself
through somebody else's eyes.
They don't come on stream
until you've got the hormones working in your body
to enable you to see things from
other people's perspectives.
And because of that, you don't start
to see bulimia nervosa emerging
until those hormones are active.
In other words, well into puberty.
So people with bulimia nervosa don't tend to present
to, don't tend to develop bulimia nervosa.
There's obviously always going to be a few exceptions,
but generally speaking, bulimia nervosa is something
that develops during or after puberty.
But then because it's a hidden illness,
it often takes a long time for anybody to notice it.
So again, unlike anorexia nervosa
where it's pretty obvious if somebody is starving
themselves, bulimia nervosa can be hidden for a long time.
So there's a very long gap sometimes
between somebody's bulimia nervosa starting
and them presenting for clinical care.
Because of that, we don't actually know how common it is
in the general population.
We know roughly that lots of people
do disordered eating behaviours of one kind
or another, whether that's binge eating, fasting,
purging, and so on.
We know that up to 60% of girls have done one
or other of these behaviours at any point in time.
And as a whole, about 11% have done those to the extent
that it would be considered clinically significant.
But how many of those have the full syndrome
of bulimia nervosa?
It's probably near a 1 to 2%, depending on
what age you look at, whether you look at females
or both genders and so on.
So the prevalence
and the incidence of the disorder does depend on age,
but it really tends to emerge in the teenage years,
but can be rather late to clinical presentation.
My child has a big appetite or tends to overindulge, could they have bulimia?
So a tendency to have a big appetite
and to overindulge isn't in itself bulimia nervosa,
but it might be a risk factor
because somebody who is overeating
by their own perception,
or even by yours, is potentially more likely
to be unhappy about how much they're eating,
and that is more likely to trigger them to feel guilty
or bad or shamed in some way about their eating behaviour.
The thing that's most likely to precipitate somebody who's
overeating into bulimia is attempting to restrict,
because if you've got a high appetite and you are hungry
and you try and restrict your eating behaviour in order
to lose weight, your appetite, your body will give you very,
very powerful messages about how hungry it is.
And if you are at the more impulsive end of the spectrum,
if you appetite drive's too too much,
or if it's making you feel bad in some way, the tendency
to eat is going to be higher.
And the issue then is about if you do eat, can you stop?
And that's when it starts to
move from overeating into bulimia nervosa.
So the biggest risk factor for the onset
of bulimia nervosa is dieting,
by which I mean dieting to the point of fasting
for prolonged period so
that your body gets into a starved state,
and it's that starved state that's thought
to precipitate binge eating behaviour in those
who are vulnerable for the reasons
of having either a high appetite or being impulsive
or being unable to regulate their own behaviour in some way.
How is bulimia diagnosed?
So bulimia nervosa isn't diagnosed by looking at somebody.
You can't tell from their weight whether somebody has got
bulimia nervosa. Weight may change if they're binge eating on a
regular basis, or they're compensating
more than they're bingeing.
So if you notice fluctuations in weight,
that might be important.
Somebody's periods may get less regular if their weight is
changing on a regular basis as well.
In terms of what you might observe as parents with a person
with bulimia nervosa, you might notice
that they're losing control over their eating,
that they can't control their appetite,
and you might notice that your child is upset by that.
But the other way that you might pick up bulimia nervosa is
because of your child's need to eliminate the food, either
because they're inducing vomiting, or
because they feel the compulsion to go out
and exercise after they've eaten.
And it's doing that on a regular basis over a period
of time, and more than once a week that would be necessary
to make a diagnosis of bulimia nervosa.
But anything you observed would need to be corroborated
by talking to the young person themselves.
They'd need to be able to describe their valuation of weight
and shape, how important that is to them,
how it's driving their eating behaviour.
They'd need to be able to describe the feelings of guilt
that drive the compensatory behaviours,
and they'd need to be able to tell you about the binge
eating episodes for you to be able
to make the diagnosis fully.
What are the treatments for bulimia in children?
The treatment for bulimia nervosa is similar
to the treatment for anorexia nervosa.
It's a whole family-based approach, and that's
because, again, eating disorders affect the whole family,
but also the whole family can be helpful in terms
of helping a young person get the balance right,
again, in terms of what matters in life
and challenge the primacy, the strength
of the eating disorder and the effect
that it's having on their life.
So a whole family-based treatment approach,
family therapy for bulimia nervosa focused on
challenging the eating disorder is the first line
intervention that's recommended.
If for any reason, that's not possible,
and you don't need to have two parents
to have family therapy, you can have
family therapy with two people.
You don't need a big family.
But usually if a family is involved,
it would be the whole family, at least for some of the time.
If for whatever reason, family therapy isn't going to work,
then the other option is an individual therapy,
and there's a cognitive behaviour therapy that is effective
for adolescent onset
bulimia nervosa, we tend to start with a family-based approach
because when it does work, it works quicker
and can be more effective.
But an individual approach is possible if the young person
is distressed by their behaviour
and is motivated to work on it.
What do you do if the first treatment you have tried doesn't work?
The first psychological intervention
that's been tried for bulimia nervosa
hasn't been effective,
whether that's a family
or an individual approach, you could try swapping,
you could go to the other alternative.
But usually what we would do
before doing that is kind of pause
and think, why is this not working?
What's going on? Is there something maybe in the
relationships that aren't working?
Is there another disorder that's getting in the way, such
as anxiety or low mood?
Has something been missed that we aren't aware of?
Whether it's a trauma
or whether it's an undiagnosed developmental disorder.
So we'd stop and have a think about why is it not working.
The other one of the options at that point would be
to add in a medication.
That's what we would call a stepped care.
So you'd start with a psychological intervention.
You start adding others in
as you see the treatment response.
So sometimes some types
of antidepressants can be very helpful in bulimia nervosa.
And then as with any disorder, if it has really become out
of control, we can think about higher levels
or more intensive levels of care.
And rarely that could involve inpatient treatment.
But there are other day treatment options.
Some people are particularly struggling with difficulties
with managing emotions
and regulations, emotional regulation,
and that would make us think about other types of treatments
that have been helpful in other disorders
that are associated with an emotional
and behavioural dysregulation pattern.
What support can parents offer to children who are experiencing bulimia?
As a parent, you are often the first person
who will notice that something's wrong with your child.
And because bulimia nervosa is associated with secretiveness
and shame and guilt, a young person may be unwilling
to talk to you about it.
So the first step that a parent can take in terms
of supporting a young person is enabling them to get
to help, enabling them to talk about what's wrong
and acknowledge that something's wrong
and that they might need help with it.
So helping a person with bulimia access care is the first step.
Once they're in treatment, the treatment is likely
to involve you as parents
because it is parents that can help put things in place,
structures in place, scaffolding, emotional support
that might be absolutely key to that young person
managing their eating behaviour in a different kind of way.
So an example would be
because binge eating disorder is often associated with
feeling guilty after eating
or is associated with feeling guilty after eating.
The tendency is for people to then go
for a long time without eating afterwards in order
to compensate for that.
But that, of course, will then make them hungry,
which increases the likelihood of them binge eating again.
And so one of the things that parents can do is ensure
that somebody's eating on a regular basis,
even though they'll be anxious about the fact that
that will make them put weight on, actually,
it might help reduce the frequency of bingeing and purging.
And ultimately, over time, that's likely to mean
that their weight is more stable,
which is what they would want.
So that's an example of the sort of structure
that a parent might put in place that would be helpful.
So things that are challenging the eating disorder
and some of the behaviours.
So supporting a person
after a mealtime so that they can't go
and vomit would be another example.
So that they are not able to follow through
that binge episode or as they perceive it to binge episodes.
Sometimes it may be subjective rather than objective,
or for example, trying
to help them limit their exercise behaviour and so on.
So there's all sorts of ways
that parents can directly intervene with the symptoms
of bulimia nervosa and this is what the family therapy
would be focusing on.
And then later on, as a young person is recovering,
then it's more about providing the sort of holistic support
that you would for an adolescent who's trying to re-identify
with themselves and to think about themselves
free from bulimia nervosa
and in a more comfortable place with their body.
And that's where things like the sort of language
around body image, supporting self-esteem, making sure
that they can find other ways of dealing with anxiety
and negative mood, if that's what's driving bulimia.
Keeping the conversation open about more supportive ways
that a young person can help
themselves with their mental health.
Other ways that parents can be supportive.
What is binge eating disorder?
Binge Eating disorder is an eating disorder in which the
person experiences a loss of control over their eating
to the extent that they binge, that means
that they can't stop eating, and
because they feel out of control about their eating,
they often feel really bad about it.
Unlike bulimia nervosa, people with binge eating disorder,
however don't do anything to compensate for it,
and that's what differentiates binge eating disorder
from bulimia nervosa.
People with binge eating disorder if they binge sufficiently
frequently, often gain weight as well, so it can be one
of the things that can drive continued weight gain,
and that might further contribute to
feeling bad about yourself
or feeling distressed by your binge eating behaviour.
But binge eating disorder is not defined by weight,
and as with other eating disorders,
you can't tell whether somebody has binge eating disorder.
By looking at them, you would need to talk to them
and find out how they were experiencing their eating
behaviour.
What are the signs and symptoms of binge eating disorder in children?
Binge eating is when a child has lost control
over their eating behaviour.
That means when they start eating, they can't stop
and they need something else
or somebody else to stop them eating.
Otherwise, it will just carry on.
And for somebody to have binge eating disorder, they need
to be doing this on a regular basis
for a significant period of time.
So over several months,
and at least once a week.
We're not just talking about overeating, overindulgent,
normal, greedy behaviour.
We are really talking about can't stop eating,
uncontrolled eating,
and it can be quite distressing for the young person.
What's the difference between binge eating disorder and bulimia?
So in binge eating disorder, the primary behaviour
of concern is binge eating behaviour
and on a regular basis, on a habitual basis.
And because somebody is overeating on a regular basis,
sometimes that can be associated with weight gain as well
and with distress.
However, unlike people with bulimia nervosa, people
with binge eating disorder don't compensate
for their binge eating behaviour by making themselves sick
or fasting or purging in some other way, or exercising.
In other words, they sit with the unhappy feeling
of feeling they're doing something which feels out
of their control and are often very distressed by that.
But it doesn't result in compensatory behaviours such
as you see in bulimia nervosa because the drive for thinness
and the wish to be losing weight isn't
as strong generally in people with binge eating disorder
as it is in people with bulimia nervosa.
What causes binge eating disorder?
With any eating disorder, there isn't a single cause.
It's a complex jigsaw of biological,
psychological, and social factors.
In people with binge eating disorder,
they often have strong genetic tendencies towards having a
high appetite and may also have tendencies
to have carry genetic risk for other disorders associated
with what we would call disinhibited behaviours.
So addictions, impulsivity, things that lead people to
be unable to stop doing something even
though it's potentially harmful.
So there's that background, biological risk
that people carry.
But then of course, usually there are individual
psychological and social factors
that will come on top of that.
And these are the things that we can intervene with.
So they're very important, but no one
of them is the same from one person to another.
So anything that is leading somebody to have
negative emotions, such as unhappiness or anxiety
or trauma, is more likely
to precipitate binge eating behaviour.
So these are often emotionally driven binge eating episodes.
And similarly, there may be factors
that are making it difficult for the young person to
feel emotionally in control
and to learn to regulate their own behaviour.
So they may not have learned the capacity to
talk about their feelings
and to self-regulate when it comes to knowing when to stop.
And that's of course where parents can come in is helping a
child recognise what's going on for themselves
and learn to find some language about how they're feeling
to help to know when to stop doing something
that's potentially harmful.
How common is binge eating disorder?
We actually don't know how common binge eating disorder in
children is because there haven't been very many good
studies looking at this,
particularly in the UK. Binge eating
behaviour is probably more common in children
who are at a higher weight.
So if you go to weight management clinics, roughly
25 to 30% of children there will be feeling
as if they've lost control over their eating
at some point or another.
But not all of those will meet full criteria
for binge eating disorder.
In terms of who comes to eating disorder services,
it's relatively rare for children
and young people to be bought for treatment
for binge eating disorder, in my experience.
And that's probably because it's under recognised
as a treatable cause of mental distress
and indeed of a driving weight gain.
So it's something that in my view, we need
to be get better at recognising in children and young people
and making sure that they do get help early.
Because we know that in adults, it can be a real driver
for distress and weight gain and ill health in later life.
And often people have been ill for a very long time
before they've got to help.
So in short, we don't really know
how common it is in the general population for children
and young people, but probably more common than we think.
How can I tell the difference between a big appetite and binge eating disorder?
So the thing that distinguishes a big appetite from binge
eating disorder, well, there's two things.
One is the loss of control over eating.
The feeling that you can't stop,
and it really is qualitatively different from
just overindulging.
People often describe going into almost a trance-like state
as they just keep eating until they can't stop.
And then the other is how upset people are.
People are overeating and overindulging often enjoy that.
It's a hedonistic thing,
whereas binge eating is really not pleasurable.
It is something that is associated with feeling disgusted
with yourself and ashamed.
It's a negative experience driven by negative emotions.
Not the same thing at all.
How is binge eating disorder diagnosed in children?
To make any diagnosis In children,
we usually get the parents' reports as well
as talk to the young person.
Eating disorders aren't defined by weight,
but sometimes people
who are binge eating on a regular basis have gained weight.
So changing weight
or are being at a higher weight might make you suspect
that somebody has got binge eating disorder.
And certainly one of the things that we are encouraging is
that everybody who is at higher weight
and who's seeking help is asked about whether
they're binge eating or not.
Parents might notice that a child can't stop their eating,
or may have tried to encourage a child not to eat so much
and being met with distress or anger or resistance,
and that would be a sign that there's something
that's not okay for the child, that they're not able to take
that without it getting very emotionally charged.
But as with any eating disorder, ultimately it comes down
to a conversation with the young person about their
experience of their eating behaviour,
how they feel about food, whether they're able
to resist the urges to binge eat
and how they feel about it when they have binge eaten.
And that's what makes the diagnosis
and identifies binge eating behaviour.
And then to meet the diagnostic criteria that needs
to be happening on a regular basis,
by which we mean more than once a week
for a significant period of time.
So not just a transient time associated with some distress,
but over a period of two months
or more that somebody's been showing this binge eating
habit.
What are the treatments for binge eating disorder in children?
Because we don't see very many people, young people
with binge eating disorder in clinical services,
there also haven't been very many clinical trials
for binge eating disorder in children
and young people, so we don't actually know
whether there are treatments that might work better
for children and young people than for adults.
So, we tend to use principles of eating disorders treatment
that seem relevant to binge eating disorder,
and that means usually taking a family-based approach,
working with parents to help a child learn
to regulate their own behaviour,
and focusing the treatment
on the eating behaviour itself
and helping a person eat regular small amounts
and learn to recognise their own appetite
and to express their emotions.
These are both core parts of eating disorders
treatment that would apply regardless
of which eating disorder diagnosis is.
If a family-based treatment approach isn't working,
then we would normally offer an individual approach,
or sometimes in an older adolescent, they may prefer to go
for an individual treatment approach right from the word go,
in which case the cognitive behaviour therapy approach would
be the first line treatment,
and that cognitive behaviour therapy involves recognising
the link between your thoughts and your behaviours
and then challenging them often through experiments
or seeing whether what happens when you try
to do something different.
First line usually
with young people is family-based treatment,
and if not, an individual treatment therapy approach.
If those approaches aren't working
and we think that there's something else may be driving
their binge eating disorder, such as low mood for example,
or anxiety, or ADHD,
attention deficit hyperactivity disorders,
very strongly associated with impulsivity
and high appetitic drive,
then we might consider whether a treatment for one of those,
what we call comorbid,
or disorders
that's going alongside binge eating disorder might be
helpful as well.
What support can parents offer to children who are experiencing binge eating disorder?
Parents support children
with mental health problems in all sorts of ways.
And the first is getting them to recognise
that there is a problem and
that they might need help with it.
And so that's the first thing to do, is to have
that conversation with your child to say,
is this something that's a problem for you?
Is this something you'd like me to try and get help with?
So getting your child to treatment is step one.
Then I think in terms of supporting during treatment
or once you have recognised the problem,
there are really two things, main things to think about.
One is how do you support with the behaviours?
How do you help your child learn
to regulate their behaviour?
And that's best done through conversation.
What can I do that would help? Would it help if I did this?
Would it help if I did that?
That's what you would be doing in therapy.
If you were in therapy for binge eating disorder,
is you'd be having a conversation with your therapist
and with your child and with other family members to think
of all the things that we can do
and all the things we've noticed about
the times when you are most likely to binge.
We've got this idea, shall we try this?
So there's isn't a one size fits all for exactly how
to do it, but helping the child regulate their eating
behaviour is one part.
And then the other part is the broader
part about the emotions.
How do you help your child deal with their distress
and their negative emotions in different kinds of ways?
And so as with any kind of therapy, that's a combination
of recognising what those emotions are, what drives them,
but also what can be done to help them talk about it
and to help deal with those negative emotions in different
ways other than through eating behaviour.
So it's that combination
of thinking about the eating specific side of things
and then the emotional support that you can offer
as parents.
What is OSFED?
OSFED stands
for other specified feeding or eating disorder.
The key word in that sentence is specified.
So OSFED isn't a single diagnosis, it's a group
of disorders that are specified
and that don't meet the main criteria for anorexia nervosa,
bulimia nervosa, or binge eating disorder.
So there are four specific OSFED diagnoses.
One is atypical anorexia nervosa.
That's anorexia nervosa
in every way except there's one feature missing.
And typically, depending on which classification system you
use, that thing that's missing may be
that the person is not at a very low weight.
Or it may be that they don't articulate the fear of fatness
and the drive for thinness that we would expect to find
in anorexia nervosa.
So there's something, in other words, it's anorexia nervosa,
but with one of the criteria missing.
Atypical bulimia nervosa
or subthreshold bulimia nervosa is exactly the same as bulimia nervosa,
the second type of OSFED,
but it is less frequent than
the behaviour is happening less frequently than is required
to meet the full diagnostic criteria.
So if somebody's bingeing
and purging once every two weeks rather than once every
week, but it's been over a significant period of time,
you would still think it was a clinically significant eating
disorder, but it doesn't quite meet the full threshold.
So that's the second OSFED subtype.
And the same is true for binge eating disorders.
So binge eating, but not at the frequency
of once a week for more than two months.
The third type of OSFED
is actually quite a clinically significant problem.
We see a lot of this, and this is something
called purging disorder.
So purging disorder is what it sounds like.
It's purging, but without the bingeing.
In other words, the person doesn't meet criteria
for bulimia nervosa because there's no bingeing.
And they don't meet criteria for anorexia nervosa
because they're not underweight and it's not driven
by extreme fear of weight gain,
but, and they're not just binge eating,
they're just purging.
The reason that purging disorder was pulled out
as a separate diagnosis was
because the cognitive behavioural theories of
bulimia nervosa said
that the purging behaviour was a
compensation for the binges.
But the person who first described it, Pam Keel, said, well,
actually I'm seeing a lot of women
who are purging without the binges.
So how does that fit into this cognitive behavioural theory?
So it was identified as a separate disorder so
that people could study it.
And that's one of the reasons for naming diagnoses.
So purging disorder is where children
and young people engage in purging behaviours -
Behaviours designed to eliminate calories and control weight
and shape, but they don't binge eat
and they don't lose significant amounts of weight.
And those purging behaviours can look like making yourself
sick, compulsively, exercising, laxative misuse,
all the things that you get in the other eating disorders.
And then the final type of
OSFED is something called night eating syndrome.
Now, I have to tell you that I have never seen night
eating syndrome in a child.
It's most commonly described in middle age
and in men as commonly as women.
So it's really not a disorder of childhood
and adolescence to my knowledge.
But of course I live and learn every day
and new things emerge all the time.
But night eating syndrome is the other subtype of OSFED.
So when you're making a diagnosis of OSFED, it's important
to say, or somebody gives you a diagnosis of OSFED, you say,
which type of OSFED. The OSFED has to be specified
so that you know how to approach it and to treat it.
What is ARFID?
Avoidant restrictive Food Intake Disorder
or ARFID for short, is a collection of presentations
that have previously been given all sorts of names,
but never was there a formal way of making their diagnoses.
So the purpose of making diagnoses is to enable people
to study a disorder.
And because the presentations that fall under the umbrella
of ARFID hadn't been described or characterised
or included in the classifications,
there was almost no research to help us understand
what happened in people who had ARFID presentations.
And there were a number of them, and I'll
explain what they are in a minute.
But since ARFID has been named as a collection of
presentations or collection of clinical characteristics,
if you like, there, research in ARFID has exploded.
And so now we know much,
much more about ARFID than we did 10, 20, 30 years ago
as a result of naming it as a new diagnosis.
But actually it's not new.
So what falls under the umbrella of ARFID are a range
of presentations, all of which include avoidance
and restriction of food that hence the name.
But the key characteristic of ARFID
that distinguishes it from anorexia nervosa,
which is the other restrictive eating disorder, is that
in ARFID, the restriction of food in the avoidance
of food is not driven by weight and shape concerns
or by anxiety about weight gain.
So if anybody is restricting their food intake
for any reason other than a fear of weight gain,
that would fall under the umbrella of ARFID.
And as you can imagine, there are quite a range
of reasons why somebody might restrict their food.
So they might have a fear of contamination of food.
They might have a fear that food might choke them.
They might have a fear that food will make them feel sick.
They might have a fear of food because it's the wrong colour
or the wrong shape, or the wrong texture,
or some other sensory feature about it.
Or they may avoid food just
because it doesn't like they don't like food.
I had a patient with ARFID the other day, said,
I find eating a chore.
It doesn't interest me. I don't want to do it.
But there was no fear associated with it specifically,
they just had no interest in food
and no drive, internal drive to eat.
So all
of those presentations fall under the umbrella of ARFID.
Now, the proposal was
that there were three subtypes of ARFID.
The first subtype is the lack of appetitic drive, a lack
of interest in food, if you like, but resulting in,
and this is key to have a diagnosis of ARFID, it needs
to be having a significant impact on your health,
whether it's physical or psychological.
So if your lack of interest in food is beginning
to impair your nutritional status,
You are losing weight or you are not growing adequately,
or you're not able to function in social terms
or psychological terms for your age
because of your lack of interest in food,
that's when it tips over into being ARFID.
The second type of ARFID is the avoidance
of food for sensory reasons.
And I've given some examples of that,
but it might be smell, texture, appearance,
the wrong packaging,
and these sorts of presentations, while strongly associated
with autism spectrum disorder can also,
people can be very sensitive to the sensory aspects of food
and avoid food for that reason.
And then the third type of ARFID that was proposed is
what I would call a more phobic type, a fear-driven type of
ARFID where there's a specific anxiety.
And this group of patients often have eaten normally,
not always, but sometimes have eaten normally.
And then something happens, they have a choking incident,
or sometimes something's happened to someone else
and they become fearful about eating food.
So for example, if
they observe somebody else being sick,
then they become fearful
that they might be sick if they eat.
So that's a more anxiety driven type of ARFID.
So these three subtypes
of ARFID were proposed when the diagnosis was first put
forward in 2013.
In fact, we see quite a lot of young people
who have a mixture of all three.
So you can have one of those subtypes
or you can have something that looks like a bit like a
blend of them.
But with all of them, the key issue is
that it's become clinically significant
that the malnutrition associated with ARFID is significant
or that the ARFID is getting in the way
of them functioning in some way psychologically or socially.
What are the signs and symptoms of ARFID in children?
So the core feature of ARFID is that it's associated
with malnutrition,
and that malnutrition can be manifest in a number of ways.
It might be that somebody is failing to grow,
a child is failing to grow and develop it normally
because they're malnourished, typically underweight.
They may have signs of micronutrient deficiency,
so vitamin deficiency, for example.
Or they may be unable to eat enough food generally
to be able to survive without having
nutritional supplements.
So if a child is dependent on nutritional supplements,
that would be one of the diagnostic criteria for ARFID,
or that they are unable to eat in a way
that other young people like them are able to eat.
And I use the word like them advisedly,
because if you've got, say for example, a food allergy
or type one diabetes or autism spectrum disorder
or other disorders that affect how you can eat
and what you might expect to eat,
or you've got a gastric disorder of some kind
that makes it impossible for you to eat
as other children would eat, then
that wouldn't mean you necessarily have ARFID.
ARFID would only be diagnosed if the difficulty
with eating is over
and above what you would expect for that disorder.
In other words, it's become a problem in its own right
rather than simply secondary
to whatever the primary problem is.
So that's the key to a diagnosis of a ARFID, is
that you've got some evidence of malnutrition
and that it's impairing function in some way.
And importantly that any avoidance
and restriction of food is not driven by weight
and shape concerns, because then
that would be another eating disorder diagnosis.
Specific types of ARFID present in slightly different ways.
So for child's not interested in food, it's much more likely
to present as weight loss or failure to grow.
If somebody's got a phobia of eating, they're more likely
to have gone into acute food refusal
or only be able to eat liquid foods, for example.
And if somebody's got a sensory avoidance of food,
then they're more likely to be highly
selective about the types of foods that they will eat.
And so what you'll see is a very narrow range of foods,
but not necessarily a small quantity of food.
And what that means is
that you can have ARFID at any weight,
so the weight isn't one of the criteria
for the diagnosis of ARFID.
You can be underweight or you can be eating plenty of food
or sometimes more than you need and be overweight,
but you are only able to eat, say, French bread
or Yorkshire puddings or something like that,
and you're not able to eat any other food.
So it's not a weight-based diagnosis.
How can I tell the difference between picky eating and ARFID?
So picky eating isn't a diagnosis, it's a description
of children's eating behaviour,
and it's a very common behaviour in children.
It's very common for children to go through phases
of picky eating as they transition from
toddlerhood into school, times when they're feeling more
challenged psychologically, such as transitions from school.
People often go back to
being very picky about their eating behaviour.
So food is very sensitive to children's emotional states,
but when it becomes clinically significant is when
that picky eating has become associated with malnutrition.
In other words, that the selectiveness of the foods
that that picky eater is able
to eat has become stuck in such a way that you are unable
to help them broaden their range of foods,
that they're unable to adapt developmentally to eating foods
that other children of a comparable age may be able to eat,
and that it's starting to impair their physical
and their psychological and social wellbeing.
Where can I go to get treatment for ARFID in children?
Treatment services for children
and young people with ARFID are still in development.
And that's because ARFID is a complex diagnosis
with multiple presentations.
And you can find out more by watching my section on
"What is ARFID?".
Because it's associated with malnutrition,
the first step is going to be correcting that malnutrition
and depending on how it's impacting the child,
that may mean you need to see a paediatrician,
it may mean that you need to see a dietitian,
or it may be that you are able
to access a specialist multidisciplinary
ARFID treatment team, which will incorporate paediatric
and dietetic input
because correcting malnutrition is the first step
with treatment with any eating disorder.
The question then becomes about access
to psychological interventions.
And there are psychological interventions for ARFID,
both family-based and individual cognitive behavioural
therapy interventions, and getting to that sort of treatment
or being assessed for whether
that treatment is likely to be effective,
that will require you being able to get to a specialist
of some kind, but which specialist
that is may depend on the type of presentation.
So if your child has ARFID on top
of autism spectrum disorder, you'll need to see somebody
who knows quite a bit about autism in order for them
to be able to understand how to adapt their treatment
to work for your child.
Similarly, if you've got the type of autism
that's associated with anxiety
and fear, it may be that that is available
through your child
and adolescent mental health services where they treat a lot
of treatments, anxiety based disorders.
And then if there's association
with significant malnutrition
or emotional difficulties more broadly
and that you need their full multidisciplinary team for,
then it may be that your eating disorder service can help.
So the answer does depend a little bit on the type
of presentation where the areas of difficulty are,
how old your child is.
So if your child is very young, it may be
that a feeding clinic is the most appropriate
place for you to get care.
If your child is older
and a teenager, then they may be more able
to participate in an individual psychological therapy,
and that's likely to be available
through a mental health service, all
through a specialist eating disorder service.
What's the difference between ARFID and anorexia or bulimia?
ARFID is distinguished from anorexia nervosa,
bulimia nervosa, and binge eating disorder by the extent
to which the centrality of weight, shape,
and appearance are what's driving
the distress or the behaviour.
So in ARFID, people
with ARFID don't care about their weight.
They don't care. They often want
to be heavier if they're thin
or it really won't be a factor.
They don't get upset about their weight.
And similarly, the fears that are driving their avoidance
of food are not driven
by concerns about their weight or their shape.
And that's what distinguishes ARFID from anorexia nervosa
and bulimia nervosa.
Sometimes it can be hard
to tell whether somebody's got ARFID or anorexia nervosa.
Sometimes you can only tell
by watching their eating behaviour.
And in anorexia nervosa, people tend to avoid specific foods
because what's at the back of their mind is "is this fattening?".
Whereas in ARFID, they may be more than happy to eat chocolate
and cake, but they won't touch vegetables.
Very, very different type of eating pattern.
And so getting to the core of what the anxiety is
that's driving the avoidance of food
and the restriction
of eating behaviour is really the key way
to tell the difference between whether somebody's got ARFID
or whether they've got anorexia nervosa
or another eating disorder.
How can I tell if my child has an eating difficulty?
Most children have likes and dislikes when it comes to food. But when does picky eating become something more? Here, we’ll tell you what you need to know about eating difficulties and eating disorders in children. We’ll also outline the signs that your child might have an eating difficulty.
What’s an eating difficulty?
An eating difficulty is when someone has a difficult relationship with food. For example, your child may not like certain foods or have unusual eating patterns. Not all eating difficulties are diagnosed as disorders.
Eating difficulties, whether diagnosed or not, may affect a child’s mental and physical wellbeing.
What’s an eating disorder?
Eating disorders are eating difficulties that have been formally diagnosed. They’re mental health conditions related to unhealthy thoughts and behaviours around food and eating.
Someone with an eating disorder may use food to feel more in control or cope with feelings. Some may also have unhealthy obsessions with weight, body image, and exercise.
There isn’t one single reason your child might develop an eating disorder. The reasons are complex and unique to each child.
What are the signs of an eating difficulty?
Some possible signs of an eating difficulty include:
- not having much of an appetite
- exercising more than usual
- a significant change in weight
- leaving the dinner table quickly
- avoiding eating in front of others
- constantly thinking about food, weight, or body shape
- only eating certain foods
- not feeling able to eat even though you want to
- limiting how much you eat
- becoming distressed at mealtimes
- drinking excessive amounts of fluids
- using the bathroom directly after meals
The signs of an eating difficulty may not always be obvious. And there may also be other signs not included in this list.
It’s best to seek help if you notice anything worrying about your child. A medical professional will be able to give your child any support they need.
What are the types of eating disorder?
There are several different types of eating disorder, which we describe below.
Avoidant restrictive food intake disorder (ARFID)
People with ARFID restrict how much food they eat or avoid certain types of food. This might be due to smell, texture or taste, or past negative experiences around food, such as choking or vomiting. ARFID isn’t usually linked to worries about weight and body image.
People with autism spectrum disorder (ASD), attention deficit hyperactivity disorder (ADHD) and intellectual disabilities are more likely to develop ARFID.
Bulimia (also known as bulimia nervosa)
People with bulimia will eat lots at once (binge-eat) and then get rid of the food from their body (purge). They may purge by vomiting or laxative use, for example. Bulimia is linked to worries about weight and body image.
Anorexia (also known as anorexia nervosa)
Anorexia is when someone restricts the amount they eat or drink for fear of gaining weight. They may create rules around food, such as what, where, or when they can eat. People with anorexia may have a low body weight.
Binge eating disorder
People with binge eating disorder will eat lots at once (binge-eat). They may feel unable to stop themselves from eating.
As well as becoming uncomfortably full, they may experience feelings such as guilt and disgust. They may also have rules around food and restrict what they eat, which can lead to more binging.
Other specified feeding or eating disorder (OSFED)
If your child’s symptoms don’t match a specific disorder, they may be diagnosed with other specified feeding or eating disorder (OSFED). For example, they may have anorexia but remain at a healthy weight. This is called atypical anorexia. Or they may eat lots of food at night or after dinner if they have night eating syndrome.
Like all other eating disorders, these behaviours might result from a child wanting to feel more in control, or to cope with difficult thoughts and feelings.
How are eating disorders treated?
The first step towards treatment is talking to a GP. Your child’s physical health will be monitored, and the GP may refer them to a specialist for further assessment and treatment. Your child may be offered specialist services such as:
- online self-help programmes
- talking therapies, like cognitive behavioural therapy (CBT) or family therapy
You could also try finding a private therapist through the British Association for Counselling and Psychotherapy (BACP). Or use free services from charities such as Beat.
If your child is very unwell, they might need to be monitored in a hospital, as an outpatient or inpatient. The treatment could include:
- talking therapies
- medication
- refeeding (gradually reintroducing food)
- group work
- managing physical health
Where can I get support?
There are lots of helpful organisations that provide support for children and young people with eating difficulties. For example, Beat, stem4, Young Minds, and Mind. Beat has an online Helpfinder where you can find support services near you. They also run a helpline and offer online support groups.
You can also contact your child’s school to see if they can get help from the school nurse or counsellor. They may be able to put adjustments in place at school to make your child more comfortable.
So, if you think your child may have an eating difficulty, don’t be afraid to ask for support. It’s available if you need it.
Looking for more support? Our Family Mental HealthLine connects you with mental health nurses for advice and guidance about your child's mental wellbeing.
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Sources Sources
- What is an eating problem? Mind. mind.org.uk, published January 2021
- Types of eating disorders. Mind. mind.org.uk, published January 2021
- Types of eating disorder. Beat. beateatingdisorders.org.uk, accessed April 2024
- A guide for young people – eating problems. Signs and symptoms of eating problems. Young Minds. youngminds.org.uk, accessed April 2024
- Parent Toolkit. National Eating Disorders Association (NEDA). nationaleatingdisorders.org, accessed April 2024
- Avoidant/restrictive food intake disorder (ARFID). Royal College of Psychiatrists. rcpsych.ac.uk, published December 2022
- What is ARFID? ARFID Awareness UK. arfidawarenessuk.org, accessed April 2024
- Bulimia nervosa. Summary. BMJ best practice. bestpractice.bmj.com, last reviewed March 2024
- Anorexia nervosa. Summary. BMJ best practice. bestpractice.bmj.com, last reviewed March 2024
- Anorexia nervosa. Beat. beateatingdisorders.org.uk, accessed April 2024
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- Eating disorders: recognition and treatment. NICE guideline [NG69]. nice.org.uk, last updated December 2020
- Treatment and support for eating disorders. Mind. mind.org.uk, published January 2021
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